tag:blogger.com,1999:blog-7551803118700199038.post7145292016640209882..comments2013-09-04T14:05:27.660-04:00Comments on To Walk and Not Grow Faint: ALS Hates “Happy”Claudiahttp://www.blogger.com/profile/05294268619531127049noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-7551803118700199038.post-51798285573658785012009-03-09T13:52:00.000-04:002009-03-09T13:52:00.000-04:00Claudia, I haven't been able to get you off my min...Claudia, I haven't been able to get you off my mind. I am so sorry for your pain and struggle. Life does seem hard and unfair. I hope you will feel the loving arms of God all around you. xo rachelA Romantic Porchhttps://www.blogger.com/profile/14548579518033537549noreply@blogger.comtag:blogger.com,1999:blog-7551803118700199038.post-18607908952855831542009-03-09T13:33:00.000-04:002009-03-09T13:33:00.000-04:00Hello Claudia...I too am a retired R.N. due to mul...Hello Claudia...I too am a retired R.N. due to multiple disabilities. I found your link to this blog on ancestry.com. You copied the picture of Byrd and Alice Matilda Robertson to your family tree. I obtained that picture at this website jgrussel.com.....Judy has done extensive research on Robertsons,Gentry,Ellis ets. Check it out when you can. How are you related to Bryd and Matlida?My direct line comes through his son Eunice Earl Robertson, and wife Ruby Lindy Mullins. I would love to share and discuss our common ancestry. I have found genealogy to be a great distraction. I always was a wanna-be quilter, and dreamed someday I would acquire the skills to make each of my four children, and ten grandbabies a quilt to pass on to them. However I never applied the time, nursing can be very demanding. Now I know I have found a true passion for genealogy, and my "quilt" that I will pass on, will be in the form of a patchwork of information of their ancestry.<BR/>Please contact me direct if you would like to share, nanalovin@gmail.com.<BR/>Know you will be in my thoughts and prayers. Sherry in TexasAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7551803118700199038.post-88061213784324893942009-02-27T10:55:00.000-05:002009-02-27T10:55:00.000-05:00I can't imagine having a progressive disease like ...I can't imagine having a progressive disease like als, I am an individual with a disability (quadriplegic). I too have a service dog (black labrador retriever) and will soon be getting a c500 permobil, how do you like yours?<BR/><BR/>I hope you have a good day, hang in there! Stop by my blog sometime.Greg (Accessible Hunter)https://www.blogger.com/profile/14284270514731142757noreply@blogger.comtag:blogger.com,1999:blog-7551803118700199038.post-66031688860417503492009-02-23T20:23:00.000-05:002009-02-23T20:23:00.000-05:00Hi Claudia,Thank you so much for writing me!! I d...Hi Claudia,<BR/><BR/>Thank you so much for writing me!! <BR/><BR/>I did see that you are a fire fighter and paramedic. On a helecopter.. no less. All I can say is that when I saw that I immediately thought you are a HERO in SOO MANY WAYS! <BR/><BR/>Pat, my fiance is a fire fighter at the Hyannis airport in Cape Cod, MA. He will be going to school in the fall to get his paramedics. He and I are so moved by your story.<BR/><BR/>I hope you don't mind but I looked at your other site, and saw all the wonderful pictures of you and your family. I am so glad I found it and learning more about you is so amazing to me. I can see how much courage you have and I know you probably don't feel that way a lot of the times having ALS. <BR/><BR/>But when I read your blog, I see so much strength and heart. I can't imagine how difficult it has been for you. When you talked about the difference between slow and fast progression, it really resonated with me. So much of what you wrote resonated with me.<BR/><BR/>I have found a few other PALS blogs and some caregivers within the past week. It devestates me to see so many suffering but I also am really glad I found you and them. I am always here should you ever need a friend. I truly mean that. Now that I know you, there won't be one day that I won't think of you and hold you close to my heart. Just remember as each day comes, we are that much closer to a cure.<BR/><BR/>I am here for you and will always be here... all the way.<BR/><BR/>Gob Bless you and your family.<BR/><BR/>With love,<BR/><BR/>AprilAprilhttps://www.blogger.com/profile/03370452286360069444noreply@blogger.comtag:blogger.com,1999:blog-7551803118700199038.post-79106779017356039042009-02-20T22:13:00.001-05:002009-02-20T22:13:00.001-05:00Hang in there! I do not know how it feels to be i...Hang in there! I do not know how it feels to be in your situation. However, my sister Stacie has had ALS since she was 21. She will be 33 in April. She had a very progressive form and lost everything including the ability to communicate within the first year. My father just passed away from ALS in June, he was officially diagnosed in Novemeber. The illness took him very fast. <BR/><BR/>I love them both more than words can express. Although Stacie is alive, I miss her terribly because she can no longer tell me how she feels, what she needs, etc. <BR/><BR/>Please hang in there. Fight the fight! Your story is so important. Keep writing and keep sharing. It helps me to read your blog. It helps me to know how she feels. Happy or sad, angry or helpless.. <BR/><BR/>You are not alone Claudia. God bless you. HUGS!!!!<BR/><BR/>April Thomas<BR/>Cape Cod, MA<BR/>aprilsparkles@yahoo.comAprilhttps://www.blogger.com/profile/03370452286360069444noreply@blogger.comtag:blogger.com,1999:blog-7551803118700199038.post-57029543590266172892009-02-20T22:13:00.000-05:002009-02-20T22:13:00.000-05:00Hang in there! I do not know how it feels to be i...Hang in there! I do not know how it feels to be in your situation. However, my sister Stacie has had ALS since she was 21. She will be 33 in April. She had a very progressive form and lost everything including the ability to communicate within the first year. My father just passed away from ALS in June, he was officially diagnosed in Novemeber. The illness took him very fast. <BR/><BR/>I love them both more than words can express. Although Stacie is alive, I miss her terribly because she can no longer tell me how she feels, what she needs, etc. <BR/><BR/>Please hang in there. Fight the fight! Your story is so important. Keep writing and keep sharing. It helps me to read your blog. It helps me to know how she feels. Happy or sad, angry or helpless.. <BR/><BR/>You are not alone Claudia. God bless you. HUGS!!!!<BR/><BR/>April Thomas<BR/>Cape Cod, MA<BR/>aprilsparkles@yahoo.comAprilhttps://www.blogger.com/profile/03370452286360069444noreply@blogger.com