The Best Birthday Ever

Monday was my birthday, and it was the best ever!  Christopher and Amy and I were joined in our inflatable pool by Julia and later Angela and her family (not all in the pool!!).  I got the most ginormous smiley face balloon of all time and a cool cake made to look like a block of cheese with cartoon mice on it!  And it was my favorite (white cake with original white icing).  YUMMMM.

We enjoyed the outdoors and then had salsa and chips and cake.  Later we played Scrabble and drank strawberry daiquiris!  I am still exhausted, but it was amazing!  I felt so loved and I am so blessed to have such good friends.  Many of you who weren't here to celebrate sent cards and I love you so much! 

God is good!

Love,  Claudia

In DEEP water............

Baptism at the Red Sea
TGIF Today God Is First Volume 2, by Os Hillman06-26-2008

"We were therefore buried with him through baptism into death in order that, just as Christ was raised from the dead through the glory of the Father, we too may live a new life" (Rom 6:4).

When Moses led the people of Israel out of Egypt, he took them to the edge of the Red Sea. The people saw the sea before them and heard the chariots of the Egyptians behind them. They knew they were trapped - and they lost their faith in God. They thought God was no longer at work in their lives. In panic and despair, they turned on Moses and said, "Why did you bring us out into the desert to die? When we were slaves in Egypt, didn't we tell you, 'Just leave us alone and let us continue serving the Egyptians.' Better to live as slaves than to die out here!"

They couldn't imagine that God's path to freedom actually led straight into and through the deep waters! The waters of the Red Sea, like the New Testament sacrament of baptism, are a symbol of death. When Moses parted the Red Sea, the people of Israel walked upon the dry seabed with walls of water on either side. They descended into the depths of the sea. They died to their old selves and rose to a new life that led to the Promised Land.

Like the people of Israel in their journey, we panic and cry out to God, "Did You bring me out into this desert of adversity to die?" We would rather live as slaves than die to self and yield control of our lives to God. But God takes us through the depths so that we can emerge as new people, ready to enter the Promised Land.

In general, I've observed that the greater and higher the calling, the more intense the adversity. I'm not saying one person's call is more important, but I am saying it may have a more far reaching impact on others. This often requires greater preparation.

If you find yourself in deep water, thank God today that He is preparing you for a life that is designed to impact many.

BAD NEWS! Again......

Today I received the ruling on my appeal hearing with Medicaid (held nearly 2 months ago). The judge ruled in the STATE's favor and my $927 per MONTH (yes, that is nine-hundred, twenty-seven dollars per MONTH) "Spend Down" (deductible amount before Medicaid will pay anything towards my bills) stands.

Needless to say this is horrible news. I still cannot fathom how the State of Indiana can maintain that a disabled adult supporting another adult and a disabled child with just over $2000 per month has (in their words) "$927 per month excess income".

I need to continue to lobby to get the ICES Policy (policy for Medicaid among other things) on this matter CHANGED.

Don't stop praying. I am at a loss...

Love,

Claudia

Christopher's Surgery Went Great!

Christopher before surgery

Hi and thanks to all who prayed for today to go well. For those of you who don't already know, Christopher had to have dental surgery under general anesthesia today. All his major dental work (sealants, x-rays, fillings, cleanings) have to be done under a general due to his behavioral issues. We were dreading today, knowing that Christopher has extreme anxiety problems anyway (without surgery!).

Julia comforts Christopher after his IV is started

We were blessed to have my friend Julia drive us down and help Amy and I out. Christopher loves Julia so her presence was a real comfort. He was anxious, but did great at keeping himself from becoming self-injurious or from getting aggressive. He was able to verbalize "I'm afraid", which was a huge milestone for him in and of itself!

He had 4 baby teeth extracted (the permanent teeth were already coming in but the baby teeth weren't falling out), cleaning, x-rays and a phrenulectomy (removed tissue between his two front teeth). He came out of anesthesia looking like he had been socked in the mouth, but otherwise did quite well. He has 4 stitches that will have to be removed on recheck.

Last time he had this, we ended up back in the ER with an asthma flare up, but this time he seems to have rebounded well. We had a fabulous anesthesiologist (even started the IV herself) who, when told of the problems last time, gave albuterol to Christopher while he was still intubated. The only problem he's having now is pain (we have good meds for that) and HIVES. The hives have abated with 50 mg. of Benedryl. :)

Thanks again for your prayers! NO major meltdowns, NO puking, NO aggression, NO asthma flare! YEAH!

Love, Claudia

The Mantises Have Arrived!

Christopher looking at his "bug kit" where the first mantis of the season is on display (later released safely...no mantises were harmed in the events described!)

A "close-up" of this summer's first praying mantis!

We are delighted to announce the birth of some baby mantises in our yard! Christopher couldn't have been happier to see the miniature version of last summers' friend! Stay tuned for further developments and pictures, I'm sure.

In other news, Phillip has been here for more than a week and we have been so glad to have him around (OK, give or take the screeching singing along with the Doodlebops or the chanting "Earth! Fire! Wind! Water! Heart! GO PLANET!" as he watched YouTube videos of "Captain Planet!).

Tomorrow a group from church will begin construction of a ramp from our back door to the back deck, along with removing our non-functional hot tub and replacing that part of the deck. I can't wait until I have a big old deck that I can go sun on! :) Thanks to Stock Building Supply and Matt Payne for the lumber and to the group from Union Chapel "Serve" who will do the work, along with an anonymous donor who paid for the railing and other materials we need. Additionally, the group will put up a small section of chain-link fence to complete the enclosure of our back yard in preparation for our Service Dog who will come home after the two-week training in late October!

I am getting a little bit of a tan, trying to go outside every day that it is nice and not too hot. This week has been fabulous! Like California without the "sun tax"! I haven't been sleeping well. I have a lot of muscle spasms in my neck, shoulders and upper back as well as over my hip bone (greater trochanter for those who care). Between the AVAPS (vent) hose and my pain, sleep is hard to come by. I bought an older electric hospital bed at a rummage sale (thanks to my friend Angela for scoping it out and calling me!) but the two foam pads still don't make it comfortable to sleep on. I need the adjustment of the head and feet to support my head and neck so that some of the strain is taken off, but the bed just isn't the right consistency. My friend Kent has a Comfort-Pedic adjustable bed and that is really what I need. If I had a queen size I could comfortably watch our evening episode of "Emergency!" with Christopher. As it is, we squeeze into the hospital bed. It is cozy, to say the least.

I am blessed that I can watch videos like that on my laptop with Christopher. It has become our nightly ritual to watch one episode of "Emergency!" and one of "Adam-12". If you don't know what those shows are (a) you're too YOUNG and (b) you can go to www.wikipedia.com and check them out. Both are spin-offs of the TV show "Dragnet" (SURELY you've heard of THAT!). Anyhow, it is a good "mommy and me" time for Christopher, plus I get to critique how much things in EMS and medicine have changed. It is a fun time for all!

I am leading an online group study of the Randy Alcorn book "Heaven" and I am so excited to be doing so. I have made so many new and wonderful "old friends" since leaving PHI. I wouldn't trade them for the world. I am BLESSED!

Hope you are blessed this June 22nd as well! Love, Claudia