Monday, April 7, 2008

Big Day

It was been a beautiful weekend and I've been frustrated by my limitations. My strength, stamina and balance are definitely worse than last fall. I tried to do some simple things outside but found myself so short of breath that I could only speak in two-word phrases and literally collapsing into bed exhausted from picking up a few dried leaves!

Today was beautiful too... probably the prettiest day of the three (warmer and sunny) but I spent it at I.U. Hospital seeing my neurologist and getting some pulmonary function tests. Now, I just want you to know that I have the coolest neruologist on the planet. He is awesome (and has been from 'day one' -- even though that day he told me I had ALS and not Myasthenia Gravis...which would have been my preference, had I been able to choose). Today's visit was no exception. He always displays great respect for my thoughts and has a great sense of humor.

After a discussion with Dr. P about my pulmonary function being affected by positon (sitting, laying down) a crack was made (I won't say by WHOM) about how function would be affected by being inverted...which led to a conversation about Stephen Hawking taking a ride on the "Vomit Comet"...the NASA aircraft that flys in a way that simulates weighlessness.

On my way out of the office, I was handed my obligaory stack of prescriptions. On top was this one:
Not ONE but TWO trips!!! THAT'S what I'm talkin' about! He cracks me up!
Now, the drama: While we were at the doctor's office my friend, Sharyll, got a call that her husband had been in a serious motor vehicle collision. We later learned that the driver of one of the OTHER two vehicles involved (a total of three were involved) was killed. Sharyll's husband is going to be fine, and they are very blessed....in spite of totalling their vehicle.
And, tonight, after I got home I had an infamous "first"... my first PUBLIC fall. No blood, no foul, but I'm gonna have some bruises. I never even got a look at the gentleman who helped Amy pick me up.....
Lots of love,
Claudia

1 comment:

A Romantic Porch said...

Claudia, How wonderful that you have a great doctor. I love your humor. Love,Rachel