I have mentioned that the past couple of weeks have been a challenge....Christopher started feeling better last night...and this morning Amy woke up sick as a dog. So, I'm trying to do what little I can for her (at least when she gets sick she knows to head to the BATHROOM) and entertain Christopher. My friends are all otherwise committed.... work (most of them) ... and my poor friend Julia had her second surgery (2 in 7 days) last week and Sharyll's husband is still injured and needing help from his car crash last week. Thankfully, Janie brought us some groceries yesterday (THANK YOU, JANIE!) and Sharyll is going to try to get Fred settled for a while and come over...long enough to at least help get the laundry and dishes caught up.
So far, Christopher is being super good....we are laying in my bed watching "Sprout TV". I am grateful for every minute he cooperates!
Poor Amy is miserable. Hopefully the motrin and phenergan suppository will help her rest and ride this out.
Please pray I don't catch the bug. I've been a maniac with antibacterial wipes and alcohol hand gel, but there's only so much you can do in a small house with sick people nearby.....
The good news is that I CAN still walk, and get to the bathroom by myself, and feed myself. I don't know how God's going to fill in the gaps when I get to the point where I can't take care of myself at all... let alone Christopher and Amy. It is scary for me.
If you have ALS and you have a family caregiver, consider how blessed you are....what's more, if you have a family caregiver who allows your spouse to work and maintain a relatively "normal" family life (kid's ball games, shopping, work, eating out) you should consider how much MORE blessed you are!
Love, Claudia
