February 16, 207 - Life is different now...of course, my life was different than 'most' before ALS....raising children with special needs changes even the most basic day-to-day tasks. Not that life is WORSE, but it is different. Today I stumbled upon a story that helps explain how my life was different even before ALS and especially how it is different now. The story is called "The Spoon Theory" and it was written by a young woman with Lupus. I encourage you to read the story by clicking here (this is a .pdf document and you will need the free Adobe Reader to access it). And the next time you face a choice about what to do...think about the number of "spoons" you have in your life. What the story doesn't discuss is how those around us can share their "spoons" with us. This is a perfect time for me to thank those of you who have taken the time and effort to "lend a spoon"...in so many different ways. There are so many things that you may take for granted that we no longer have the luxury to.... Now, make NO MISTAKE (!) I DO NOT WANT PITY from ANYONE. I have a wonderful, rich life full of blessings! But, sometimes, I do need help...and that need will only increase as my ability to function declines. I am grateful to those of you who choose to help....the co-worker and neighbor who just stops by with jugs of distilled water for my BiPAP because she knows I need it every night...the co-worker who mowed my yard (before the deep freeze hit!)....the friend who stopped by just to say "hi" and took time to play with Christopher....the friend and co-worker who cleaned my bathrooms and of course the friends and strangers who have donated as well!!! There is no gift too small. You bless me with an email or an IM and I need that friendship as much as we need material and tangible help. THANK YOU!
I hope you'll take the time to read "The Spoon Theory" and that it reminds you of all the blessings you have in your life! Don't take your "spoons" for granted! As the author of "The Spoon Theory" says: “I see this as a blessing. I have been forced to think about everything I do. Do you know how many spoons people waste everyday? I don’t have room for wasted time, or wasted “spoons” and I chose to spend this time with you.” Love, Claudia